The second survey voting for Top 10 questions about hyperacusis is now open.
Some people have real difficulty coping with everyday sounds such as car noise, dishwashers, or people talking. This is a hearing problem called hyperacusis. It affects about one in ten adults and children. People with hyperacusis report that everyday sounds are intense, frightening, painful, or overwhelming.
The purpose of this project is to help us to find out what research would make a difference to people with lived experience of hyperacusis (adults, children experiencing hyperacusis and carers, parents, family, teachers) and healthcare professionals.
We would like to thank you everyone that completed our initial survey! We had an amazing response with a total of 312 people submitting questions about hyperacusis. A total of 2500 questions were submitted!!
The second survey is now open (https://4e513778.optimalworkshop.com/optimalsort/hyperacusispsp-0)
We’ve checked through the questions submitted, grouped similar together and have now produced a list of list of “unanswered” questions about hyperacusis for people to vote which they think are most important for research to answer.
If you have hyperacusis, are you a parent or family member of someone experiencing hyperacusis or are you a healthcare professional who works with and support those who experience hyperacusis then you can now vote for the Top 10 you think are most important for research to target.
Please follow the link to vote: https://4e513778.optimalworkshop.com/optimalsort/hyperacusispsp-0
It will take no more than 15 minutes to complete but could change the future of hyperacusis research and clinical practice in the UK. Anyone with experience of hyperacusis can complete this survey. You do not have to have taken part in any previous studies.
We looking forward to hearing from you,
Kind regards,
Kathryn
Dr Kathryn Fackrell
Hyperacusis PSP coordinator
Research Fellow in Hyperacusis
NIHR Nottingham Biomedical Research Centre
